10:00 AM: Registration starts at Yankee Distillers
(5 Fairchild Square, Clifton Park, NY 12065)
11:00 AM: Kid's 200 Meter Dash
11:30 AM: 5k run [or] 3k walk
Celebrate with everyone at Yankee Distillers after the race (there will be a food truck, kona ice, bowled and cocktails to purchase as well as a 50/50 & raffles) **Be sure to bring cash for raffles and 50/50**
Poland syndrome is a disorder in which affected individuals are born with missing or underdeveloped muscles on one side of the body, resulting in abnormalities that can affect the chest, shoulder, arm, and hand. The extent and severity of the abnormalities vary among affected individuals. People with Poland syndrome are typically missing part of one of the major chest muscles, called the pectoralis major. In most affected individuals, the missing part is the large section of the muscle that normally runs from the upper arm to the breastbone (sternum). The abnormal pectoralis major muscle may cause the chest to appear concave. In some cases, additional muscles on the affected side of the torso, including muscles in the chest wall, side, and shoulder, may be missing or underdeveloped. In severe cases of Poland syndrome, the spine can be fused or malformed. This can lead to thoracic deformations and respiratory challenges. Certain bone defects could be present in people with Poland syndrome. This includes an underdeveloped or absent portion of ribs and cartilage where the ribs attach to the sternum.
Come join us for a family friendly event to raise awareness (& money) for Poland Syndrome. Unfortunately, Poland Syndrome is very rare and does not have a lot of awareness surrounding it. Our goal is to help spread the word so that more medical professionals (& people in general) are aware of this disease. In personal experience with Poland Syndrome doctors are often shocked and have to do their own googling to learn more about the disease. We have only successfully seen one doctor who was aware of Poland Syndrome and that was at Shriners Children's Hospital in Springfield, MA. A portion of all proceeds from this 5k event will benefit Shriners directly. Learn more about all of the amazing things Shriners does for families at shrinerschildrens.org
This payment gets you a PSA5k shirt to wear the day of as well as your entry to the race/walk! Cost is $40 for every runner or walker participating. Children are free. To register for multiple events (such as the kids run and the 5K) you must add 2 separate registrations to your cart!
Please indicate your shirt size(s) with payment.
*Must be present day of race to receive shirt & swag, these items will not be held past race day*
If you would like to simply make a donation click the link to the fundraising page in the details section of the registration page below!
REGISTER OR DONATE HERE:
PHINNEY DESIGN GROUP | YANKEE DISTILLERS | FIFTEEN BLUE, LLC | BEST FRAME FORWARD | KLEIN PROJECT DEVELOPMENT & CONSULTING | SEVEN K METALS | ELKS LODGE 2466 | ALBANY PATROONS | NEXT GENERATION ROOFING | PIONEER BANK | CARUSO ELECTRICAL CONTRACTING | CHRISSY'S CRAVINGS | MARK'S AUTOMOTIVE | EDGE CREATIVE CO. | WHITTAKE APPRAISAL GROUP | DOLLHOUSE & CO. | HELSOMS DESIGNS 4 U | CPL | COUNTY WASTE & RECYCLING | HANNOUSH JEWELERS, INC. | CASALE-RENT-ALL | MINUTEMAN PRESS | PRECISION APPAREL | SKEETER ENTERTAINMENT CO.
poland syndrome awareness [psa5k]
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